Foreword 03

Service: Board of Directors, contact telephone, advisory board, scientific advisory board 06

Featured: Patient Library: Patient Journal Respiratory Tract and Lungs 08

Documented for you

Impressions from the group leader meeting in Leipzig: 3 days of a "full program" 09

Plasma donation process 12

Our group leader meeting: Internal topics and call for entries 13

Patient history: The long lead-up to substitution therapy 14

Miscellaneous:

Introduction: The Pulmonary Exercise Handbook 16

Reflexive respiratory therapy (RAT) for pulmonary emphysema 16

Enjoy candlelight even with A1ATM – here's a better way 19

Announcements: Information Day 2020, Children & Youth Day 2020, Anniversary 2021

Alpha-1 & the psyche: Smart patients ask their doctor or pharmacist 22

A note from us:

GDPR in our club 24

Survey results: Alpha-1 and cancer 25

Do people with alpha-1 antitrypsin deficiency have a lower susceptibility to developing cancer? 26

From the self-help groups (SHG)

Self-help group leaders are finding it difficult to find successors, according to reports from many groups – but not in ours! 27

The severely disabled person's ID card offers many advantages 28

July 2019: Camino de Santiago hike from Cologne to Trier 29

Patient event CSL Behring on September 21, 2019 30

The chronicle of the SHG Saxony and Saxony-Anhalt 31

Remembrance 33

Alpha Kids & Alpha Teens: The Children's Network 34

Letters to the editor

Impressions from the patient hiking day „My breath, my path“ 34

My breath, my path in Lüneburg 35

My rehab in 2019 in Schönau 36

Alpha1 on the move

12th Lung Symposium in Hattingen – we were there! 37

Presentation of the SHG Hamburg at the information mile in Altona 38

Alpha1 workshop in Frankfurt November 4, 2019 38

Annual closing meeting of the SHG Hamburg 39

Alpha1 On the Road 40

Report on the experiences of the TIGEM Alpha-1 Research Conference 42

A word about finances 43

Advertising in Alpha1 Journal 45

Thanks to all sponsors and Imprint 46

Declaration of accession 47