Alpha1 Journal Issue 2/2024
From movement to encounters: Group leader meeting 2024 and a year full of highlights!
This issue contains:
- RARE DISEASES RUN 2025
- Alpha1 wins sponsorship award
- Constriction, fear, shortness of breath: Three unwelcome companions
- New study on liver involvement in Alpha-1
- One year of Alpha-1 Europe Alliance
Download the journal as a PDF:
In this issue
03 Preface
06 Service: Executive Board and Advisory Boards
08 Introducing: Scientific reinforcement on the advisory board
PREVIEW:
09 Schedule preview 2025
10th Annual General Meeting and Information Day 2025
ON A PERSONAL NOTE:
11 RARE DISEASES RUN 2025 – registration is now open!
12 Fit and connected: Alpha1 Germany wins award for exercise and exchange
13 Effective Helps for Mucus Problems – New video now online!
14 patient days and self-help groups: Insights and developments
DOCUMENTED FOR YOU:
15 Report on the group leader meeting of Alpha1 Germany
17 impressions from the group leader meeting by Hans Frank, Alpha1 Austria eV.
ALPHA1 ON THE ROAD:
18 The 3rd South German Alpha1 Patient Day in Stuttgart – another great event
19 Alpha1 Germany attends the ERS Congress
22 plasma donations for patients with alpha-1 deficiency: Lifesaving help from society
ALPHA-1 AND THE PSYCHE:
23. Constriction, fear, shortness of breath: Three unwelcome companions
MISCELLANEOUS:
26th page of mourning
27 Mental Fitness – Memory Training for Everyday Life
28 Congratulations on AlphaCare's 10th anniversary!
ALPHA1 INTERNATIONAL:
29 The Alpha-1 Europe Alliance celebrates its 1st birthday
FROM RESEARCH:
32 New study on liver involvement in alpha1-antitrypsin deficiency published
33 What is gender medicine?
LETTERS TO THE EDITOR:
35 My experiences with the SERVOX Air Pro nebulizer
36 A word about finances…