Alpha1 Journal Issue 2/2024

From movement to encounters: Group leader meeting 2024 and a year full of highlights!

This issue contains:

  • RARE DISEASES RUN 2025
  • Alpha1 wins sponsorship award
  • Constriction, fear, shortness of breath: Three unwelcome companions
  • New study on liver involvement in Alpha-1
  • One year of Alpha-1 Europe Alliance

Download the journal as a PDF:

In this issue

03 Preface

06 Service: Executive Board and Advisory Boards

08 Introducing: Scientific reinforcement on the advisory board

PREVIEW:

09 Schedule preview 2025

10th Annual General Meeting and Information Day 2025

ON A PERSONAL NOTE:

11 RARE DISEASES RUN 2025 – registration is now open!

12 Fit and connected: Alpha1 Germany wins award for exercise and exchange

13 Effective Helps for Mucus Problems – New video now online!

14 patient days and self-help groups: Insights and developments

DOCUMENTED FOR YOU:

15 Report on the group leader meeting of Alpha1 Germany

17 impressions from the group leader meeting by Hans Frank, Alpha1 Austria eV.

ALPHA1 ON THE ROAD:

18 The 3rd South German Alpha1 Patient Day in Stuttgart – another great event

19 Alpha1 Germany attends the ERS Congress

22 plasma donations for patients with alpha-1 deficiency: Lifesaving help from society

ALPHA-1 AND THE PSYCHE:

23. Constriction, fear, shortness of breath: Three unwelcome companions

MISCELLANEOUS:

26th page of mourning

27 Mental Fitness – Memory Training for Everyday Life

28 Congratulations on AlphaCare's 10th anniversary!

ALPHA1 INTERNATIONAL:

29 The Alpha-1 Europe Alliance celebrates its 1st birthday

FROM RESEARCH:

32 New study on liver involvement in alpha1-antitrypsin deficiency published

33 What is gender medicine?

LETTERS TO THE EDITOR:

35 My experiences with the SERVOX Air Pro nebulizer

36 A word about finances…

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