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In this issue
03 Preface
06 Service: Board of Directors, contact telephone, advisory board, scientific advisory board
08 Introducing: Roland Bühner – New group leader of the SHG Franken
ON A PERSONAL NOTE:
10 22 years of Alpha1 – We're celebrating this milestone with an information day and a festival
11 Save the date: Events in 2022
DOCUMENTED FOR YOU:
12th Online General Meeting 2022
14 Virtual group leader meeting as a workshop,
March 19, 2022 – via Zoom
ALPHA-1 & THE PSYCHE:
18. Shortness of breath anxiety before physical activity: What role does avoidance play? Should patients with shortness of breath anxiety always avoid avoidance – or is it better to avoid it ‚deliberately‘?
ALPHA1 ON THE ROAD & MISCELLANEOUS:
20 Commemoration
21 Attendance at the Alpha1 Austria members' meeting and information day
22 Alpha1 On the Road – the DGP
23rd Patient Day in Aachen
24th Action Week for Inclusion – we were there!
Relieving 24 ailments without medication: Breathing therapy and breathing exercises with aids. What's the difference and why do both make sense?
27 Survey results on the quality of life of lung patients during the COVID-19 pandemic
28 Pulmonary exercise – Review (basics and the last two years) and outlook (further development)
31 Newborn screening
33 Participation in studies within the framework of evidence-based medicine
35 phases of drug approval
38 Digitization – a brief overview
39 things worth knowing about assistive devices
FROM THE SELF-HELP GROUPS:
42 Overcoming crises with splashes of color – and how our throat robs us of fitness – a CSL event in Mainz
FROM RESEARCH:
43 Wanted: Pi*ZZ test subjects
43 Register EARCO
LETTERS TO THE EDITOR:
44 Report on the Pulse Oximeter Ring
44 My path to becoming a pulmonary exercise trainer
45 Borkum – Always worth a rehab stay
47 Alpha1 rehabilitation in Germany – My status assessment
48 A word about finances