Alpha1 Journal

Issue 1/2022

By May 21, 2022#!31Tue, 19 Aug 2025 10:52:17 +0200+02:001731#31Tue, 19 Aug 2025 10:52:17 +0200+02:00-10Europe/Berlin3131Europe/Berlin202531 19am31am-31Tue, 19 Aug 2025 10:52:17 +0200+02:0010Europe/Berlin3131Europe/Berlin2025312025Tue, 19 Aug 2025 10:52:17 +02005210528amTuesday=0#!31Tue, 19 Aug 2025 10:52:17 +0200+02:00Europe/Berlin8#August 19th, 2025#!31Tue, 19 Aug 2025 10:52:17 +0200+02:001731#/31Tue, 19 Aug 2025 10:52:17 +0200+02:00-10Europe/Berlin3131Europe/Berlin202531#!31Tue, 19 Aug 2025 10:52:17 +0200+02:00Europe/Berlin8#No Comments2 min read

Alpha1 Journal Issue 1/2022

Focus: Virtual General Meeting & Group Leader Meeting 2022

This issue contains:

  • New group leadership of the SHG Franken
  • Pulmonary rehabilitation – review & outlook
  • Newborn screening
  • Drug trials & drug approval
  • Useful information about assistive devices

Download the journal as a PDF:

In this issue

03 Preface

06 Service: Board of Directors, contact telephone, advisory board, scientific advisory board

08 Introducing: Roland Bühner – New group leader of the SHG Franken

ON A PERSONAL NOTE:

10 22 years of Alpha1 – We're celebrating this milestone with an information day and a festival

11 Save the date: Events in 2022

DOCUMENTED FOR YOU:

12th Online General Meeting 2022

14 Virtual group leader meeting as a workshop,

March 19, 2022 – via Zoom

ALPHA-1 & THE PSYCHE:

18. Shortness of breath anxiety before physical activity: What role does avoidance play? Should patients with shortness of breath anxiety always avoid avoidance – or is it better to avoid it ‚deliberately‘?

ALPHA1 ON THE ROAD & MISCELLANEOUS:

20 Commemoration

21 Attendance at the Alpha1 Austria members' meeting and information day

22 Alpha1 On the Road – the DGP

23rd Patient Day in Aachen

24th Action Week for Inclusion – we were there!

Relieving 24 ailments without medication: Breathing therapy and breathing exercises with aids. What's the difference and why do both make sense?

27 Survey results on the quality of life of lung patients during the COVID-19 pandemic

28 Pulmonary exercise – Review (basics and the last two years) and outlook (further development)

31 Newborn screening

33 Participation in studies within the framework of evidence-based medicine

35 phases of drug approval

38 Digitization – a brief overview

39 things worth knowing about assistive devices

FROM THE SELF-HELP GROUPS:

42 Overcoming crises with splashes of color – and how our throat robs us of fitness – a CSL event in Mainz

FROM RESEARCH:

43 Wanted: Pi*ZZ test subjects

43 Register EARCO

LETTERS TO THE EDITOR:

44 Report on the Pulse Oximeter Ring

44 My path to becoming a pulmonary exercise trainer

45 Borkum – Always worth a rehab stay

47 Alpha1 rehabilitation in Germany – My status assessment

48 A word about finances

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