Alpha1 Journal Issue 1/2023
The wait was over: a full house and a great atmosphere at the 20+2 anniversary celebration in Bad Wildungen
This issue contains:
- Highlights from the 2023 Information Day
- Announcement: Alpha1 Children & Youth Day 2023
- Solution for glasses wearers: Simply integrate the oxygen hose
- Lip brakes with pleasure
- New webinar series: Everything that is (social) law
- Plasma donation: Alpha-1 report explains
Download the journal as a PDF:
In this issue
03 Preface
06 Service: Executive Board and Advisory Boards
08 Introducing: Katrin Fell – Supporting the Board
ON A PERSONAL NOTE:
09 Schedule preview 2023
10-20 years – Life in the Alpha1 club
11 Alpha1 Children and Youth Day 2023
DOCUMENTED FOR YOU:
12 It's something special...
13th Alpha1 Information Day in Bad Wildungen
14 impressions of the anniversary event
16 Univ.-Prof. Strnad: Alpha-1: How the liver was rediscovered
18 Prof. Dr. Vogelmeier: Substitution with Alpha1 – from the beginnings to the present day
20 Dr. Janciauskiene-Wallmark: Discovery, Research and Development at Alpha-1
22 Dr. Kardorff: Alpha-1 – Special characteristics in children and adolescents
25 Prof. Dr. Koczulla: Movement and Rehabilitation in Alpha-1
27 Dr. Jarosch: Personalized Therapy PROMISE
30 dr. Rupp: Alpha1 & lungs – more than COPD and emphysema
33 Ingenious solutions for glasses wearers. Survey: Information services on the rise.
ON A PERSONAL NOTE:
35 Alpha-1 Report: The vital role of plasma donations
36 Webinar Series: Everything that is (Social) Law ALPHA-1 & THE PSYCHE:
37 Lip brakes with pleasure…
41 Commemoration
ALPHA1 ON THE ROAD & ALPHA1 INTERNATIONAL:
42 Short report Alpha1 patient day in Heidelberg
43 Visit report from the Alpha-1 Global 5th Research Conference & 8th Patient Congress in Dublin
44 Visit report: IPPC2023 in Lisbon
46 European Alpha-1 patient organizations on the way to the Alpha-1 Europe Alliance
LETTERS TO THE EDITOR:
49 Sport is the key – a short book recommendation
50 My Path to Substitution – Three Voices Tell Their Stories
52 My experiences with PROMISE
FROM RESEARCH:
53rd visit to the DGPs – presentation of the Alpha1 Science Awards
FROM THE SELF-HELP GROUPS:
53rd Patient Day in Stuttgart
55 Honoring long-serving leaders & In memory of Ursula Krütt-Bockemühl
56 A word about finances
58 Imprint, Sponsors and Supporters