Alpha1 Journal

Issue 1/2023

By June 22, 2023#!31Tue, 19 Aug 2025 10:34:56 +0200+02:005631#31Tue, 19 Aug 2025 10:34:56 +0200+02:00-10Europe/Berlin3131Europe/Berlin202531 19am31am-31Tue, 19 Aug 2025 10:34:56 +0200+02:0010Europe/Berlin3131Europe/Berlin2025312025Tue, 19 Aug 2025 10:34:56 +02003410348amTuesday=0#!31Tue, 19 Aug 2025 10:34:56 +0200+02:00Europe/Berlin8#August 19th, 2025#!31Tue, 19 Aug 2025 10:34:56 +0200+02:005631#/31Tue, 19 Aug 2025 10:34:56 +0200+02:00-10Europe/Berlin3131Europe/Berlin202531#!31Tue, 19 Aug 2025 10:34:56 +0200+02:00Europe/Berlin8#No Comments2 min read

Alpha1 Journal Issue 1/2023

The wait was over: a full house and a great atmosphere at the 20+2 anniversary celebration in Bad Wildungen

This issue contains:

  • Highlights from the 2023 Information Day
  • Announcement: Alpha1 Children & Youth Day 2023
  • Solution for glasses wearers: Simply integrate the oxygen hose
  • Lip brakes with pleasure
  • New webinar series: Everything that is (social) law
  • Plasma donation: Alpha-1 report explains

Download the journal as a PDF:

In this issue

03 Preface

06 Service: Executive Board and Advisory Boards

08 Introducing: Katrin Fell – Supporting the Board

ON A PERSONAL NOTE:

09 Schedule preview 2023

10-20 years – Life in the Alpha1 club

11 Alpha1 Children and Youth Day 2023

DOCUMENTED FOR YOU:

12 It's something special...

13th Alpha1 Information Day in Bad Wildungen

14 impressions of the anniversary event

16 Univ.-Prof. Strnad: Alpha-1: How the liver was rediscovered

18 Prof. Dr. Vogelmeier: Substitution with Alpha1 – from the beginnings to the present day

20 Dr. Janciauskiene-Wallmark: Discovery, Research and Development at Alpha-1

22 Dr. Kardorff: Alpha-1 – Special characteristics in children and adolescents

25 Prof. Dr. Koczulla: Movement and Rehabilitation in Alpha-1

27 Dr. Jarosch: Personalized Therapy PROMISE

30 dr. Rupp: Alpha1 & lungs – more than COPD and emphysema

33 Ingenious solutions for glasses wearers. Survey: Information services on the rise.

ON A PERSONAL NOTE:

35 Alpha-1 Report: The vital role of plasma donations

36 Webinar Series: Everything that is (Social) Law ALPHA-1 & THE PSYCHE:

37 Lip brakes with pleasure…

41 Commemoration

ALPHA1 ON THE ROAD & ALPHA1 INTERNATIONAL:

42 Short report Alpha1 patient day in Heidelberg

43 Visit report from the Alpha-1 Global 5th Research Conference & 8th Patient Congress in Dublin

44 Visit report: IPPC2023 in Lisbon

46 European Alpha-1 patient organizations on the way to the Alpha-1 Europe Alliance

LETTERS TO THE EDITOR:

49 Sport is the key – a short book recommendation

50 My Path to Substitution – Three Voices Tell Their Stories

52 My experiences with PROMISE

FROM RESEARCH:

53rd visit to the DGPs – presentation of the Alpha1 Science Awards

FROM THE SELF-HELP GROUPS:

53rd Patient Day in Stuttgart

55 Honoring long-serving leaders & In memory of Ursula Krütt-Bockemühl

56 A word about finances

58 Imprint, Sponsors and Supporters

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