Alpha1 Journal

Issue 2/2023

By December 8, 2023#!31Tue, 19 Aug 2025 10:14:05 +0200+02:000531#31Tue, 19 Aug 2025 10:14:05 +0200+02:00-10Europe/Berlin3131Europe/Berlin202531 19am31am-31Tue, 19 Aug 2025 10:14:05 +0200+02:0010Europe/Berlin3131Europe/Berlin2025312025Tue, 19 Aug 2025 10:14:05 +02001410148amTuesday=0#!31Tue, 19 Aug 2025 10:14:05 +0200+02:00Europe/Berlin8#August 19th, 2025#!31Tue, 19 Aug 2025 10:14:05 +0200+02:000531#/31Tue, 19 Aug 2025 10:14:05 +0200+02:00-10Europe/Berlin3131Europe/Berlin202531#!31Tue, 19 Aug 2025 10:14:05 +0200+02:00Europe/Berlin8#No Comments2 min read

Alpha1 Journal Issue 2/2023


Group Leader Conference 2023 in Darmstadt - "A dynamic process"„

This issue contains:

  • Alpha-1 Europe Alliance: The path to founding
  • Milestone: Alpha1 welcomes its 1,000th member
  • COVID anxiety: How to recognize and act correctly
  • Fazirsiran study as a beacon of hope for liver patients
  • PROMISE: Personal respiratory physiotherapy

Download the journal as a PDF:

In this issue

03 Preface

06 Service: Executive Board and Advisory Boards

08 Introducing: Prof. Dr. med. Trudzinski Support of the Scientific Advisory Board

ON A PERSONAL NOTE:

09 Alpha1 Children and Youth Day 2023

10 Petra Objartel: The new voice of Alpha1

10 Alpha1 is now on Instagram

11th Annual General Meeting and Information Day 2024

12 Milestone: Alpha1 welcomes its 1,000th member

COVER STORY:

13th Group Leader Conference from October 13th to 15th, 2023 in Darmstadt

14 Collection of comments

15 Guest report by Johann Frankl

16 Insurance for volunteers

DOCUMENTED FOR YOU:

17 Alpha-1 Europe Alliance: The path to founding

19 SoHO Regulation and Petition

20 Newborn Screening AXIS

22 Rehabilitation: An Introduction

LETTERS TO THE EDITOR:

23 From rehabilitation plans and bureaucratic chaos: My fight against the system's machinery

24 My rehabilitation at the Baltic Sea Clinic in Prerow

25 reasons why memory training is just as important as muscle training

ALPHA1 AND THE PSYCHE:

27 COVID anxiety: recognize it correctly and act accordingly

29 Commemoration

ALPHA1 ON THE ROAD:

30th Patient Day in Essen in a new guise

31 1st Kempten Alpha1 Patient Day

32 2nd South German Alpha-1 Antitrypsin Patient Day

33 Alpha1 Germany on the 4th day on organ donation and transplantation

34 Reopening of the Haema donation center in Brandenburg

35 Alpha1 Europe Alliance in Barcelona

MISCELLANEOUS:

Webinar series 37: Everything that (social) law is!

38 Call for the collection of disability rating applications

38 Live Facebook Webinar

39 Alpha1 in the press

40 The path to including AATM screenings

FROM RESEARCH:

41 Grifols ALTA AWARD

41 Third phase of the Fazirsiran study

42 Hepatitis A and B vaccination

44 PROMISE: Personal training and respiratory physiotherapy for Alpha-1 patients

LETTERS TO THE EDITOR:

46 Therapy from home with Pneumo Factory

48 A word about finances

49 Imprint, Sponsors and Supporters

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