Alpha1 Journal Issue 2/2023
Group Leader Conference 2023 in Darmstadt - "A dynamic process"„
This issue contains:
- Alpha-1 Europe Alliance: The path to founding
- Milestone: Alpha1 welcomes its 1,000th member
- COVID anxiety: How to recognize and act correctly
- Fazirsiran study as a beacon of hope for liver patients
- PROMISE: Personal respiratory physiotherapy
Download the journal as a PDF:
In this issue
03 Preface
06 Service: Executive Board and Advisory Boards
08 Introducing: Prof. Dr. med. Trudzinski Support of the Scientific Advisory Board
ON A PERSONAL NOTE:
09 Alpha1 Children and Youth Day 2023
10 Petra Objartel: The new voice of Alpha1
10 Alpha1 is now on Instagram
11th Annual General Meeting and Information Day 2024
12 Milestone: Alpha1 welcomes its 1,000th member
COVER STORY:
13th Group Leader Conference from October 13th to 15th, 2023 in Darmstadt
14 Collection of comments
15 Guest report by Johann Frankl
16 Insurance for volunteers
DOCUMENTED FOR YOU:
17 Alpha-1 Europe Alliance: The path to founding
19 SoHO Regulation and Petition
20 Newborn Screening AXIS
22 Rehabilitation: An Introduction
LETTERS TO THE EDITOR:
23 From rehabilitation plans and bureaucratic chaos: My fight against the system's machinery
24 My rehabilitation at the Baltic Sea Clinic in Prerow
25 reasons why memory training is just as important as muscle training
ALPHA1 AND THE PSYCHE:
27 COVID anxiety: recognize it correctly and act accordingly
29 Commemoration
ALPHA1 ON THE ROAD:
30th Patient Day in Essen in a new guise
31 1st Kempten Alpha1 Patient Day
32 2nd South German Alpha-1 Antitrypsin Patient Day
33 Alpha1 Germany on the 4th day on organ donation and transplantation
34 Reopening of the Haema donation center in Brandenburg
35 Alpha1 Europe Alliance in Barcelona
MISCELLANEOUS:
Webinar series 37: Everything that (social) law is!
38 Call for the collection of disability rating applications
38 Live Facebook Webinar
39 Alpha1 in the press
40 The path to including AATM screenings
FROM RESEARCH:
41 Grifols ALTA AWARD
41 Third phase of the Fazirsiran study
42 Hepatitis A and B vaccination
44 PROMISE: Personal training and respiratory physiotherapy for Alpha-1 patients
LETTERS TO THE EDITOR:
46 Therapy from home with Pneumo Factory
48 A word about finances
49 Imprint, Sponsors and Supporters