Meldungen der Gesellschaft für Alpha-1-Antitrypsinmangel Erkrankte

By A1D Web Editorial Team In Generally

Support for relatives of people with alpha-1 antitrypsin deficiency

By A1D Web Editorial Team In Generally

Farewell to Jürgen Frischmann

By A1D Web Editorial Team In Generally

Alpha-1 History Video: When Medical History Comes Alive

Alpha1 Journal Research and studies

PerMed-COPD – Patients at the Center of Research

Marion Wilkens, as published in Alpha1-Journal 1/2025. Individual approaches to the therapy of chronic obstructive pulmonary disease…

Editorial team Alpha1 Germany eV.September 22, 2025

Mit dem PROM Projekt soll ein Fragebogen für Alpha-1 Betroffene entwickelt werden, der die Lebensqualität realistisch erfasst.

Alpha1 Journal Research and studies

ALPHA – The new patient questionnaire for assessing quality of life in alpha-1 antitrypsin deficiency

Marion Wilkens, as published in Alpha1-Journal 1/2025. Alpha-1 antitrypsin deficiency (AATD) is a rare, inherited…

Editorial team Alpha1 Germany eV.September 22, 2025

Gruppenbild der Alpha1 Europe Alliance und die Zusammenfassung Ihrer Arbeitsschwerpunkte aus dem Jahr 24/25

Alpha1 Journal International

Key topics from the work of the Alpha-1 Europe Alliance Autumn 2024/Spring 2025

Heinz Stutzenberger, as published in Alpha1 Journal 1/2025. Three events from the Alpha-1 Europe Alliance are featured…

Editorial team Alpha1 Germany eV.September 22, 2025

Bild der Stadt Trier. Neuer Standort der Selbsthilfegruppe Alpha1 Trier-Koblenz.

Alpha1 Journal SHG Region Trier Event reports

The SHG region of Trier introduces itself

Wolfgang Schneider, as published in Alpha1-Journal 1/2025. Our first patient day was an AlphaCare regional day, supported…

Editorial team Alpha1 Germany eV.September 22, 2025

Alpha1 Journal Alpha1 Register

Why do we need a European patient registry – and what benefits will it bring us?

Marion Wilkens, as published in Alpha1-Journal 1/2025. A patient registry is an electronic database in which…

Editorial team Alpha1 Germany eV.September 22, 2025

Exklusiver Podcast mit Haema zum Thema Alpha-1 und Blutspende.

blood plasma

Together against Alpha-1: Our podcast with HAEMA

Alpha1 Germany e.V., as published in the Alpha1 Journal 1/2022. In cooperation with HAEMA, it was created at the end of…

Editorial team Alpha1 Germany eV.September 22, 2025