Meldungen der Gesellschaft für Alpha-1-Antitrypsinmangel Erkrankte

Rare Disease Day at the Dessau-Roßlau Municipal Hospital

Rare Disease Day at the Dessau-Roßlau Municipal Hospital on February 22, 2025. On February 22, 2025, the Rare Disease Day took place again…

A1D Web Editorial TeamMarch 12, 2025

Generally Group meeting SHG Berlin SHG Brandenburg

First meeting of the self-help groups Berlin and Brandenburg in 2025

Report on the first meeting of the self-help groups of Berlin and Brandenburg on March 11, 2025. On March 11, 2025…

A1D Web Editorial TeamMarch 12, 2025

Generally Research and studies

Participation in a study investigating psychological stress and quality of life in individuals with COPD due to alpha-1 antitrypsin deficiency (AATD)

Participation in a study investigating psychological stress and quality of life in individuals with COPD due to alpha-1 antitrypsin deficiency (AATD)...

A1D Web Editorial TeamMarch 5, 2025

Generally psyche

Mental Health and Lung Conditions: Action and Awareness – A webinar from the European Lung Foundation

Focus on mental health in lung diseases. On February 25th, an event was held by the ELF working group…

Thomas HeimannMarch 5, 2025

Generally SHG Region Trier

New self-help group (SHG) for the Trier region is online

My name is Wolfgang Schneider and I also come from the Trier area. I have been here since…

Thomas HeimannFebruary 17, 2025

Generally Relaxation techniques and good sleep Pulmonary exercise rehabilitation

PROMISE goes into overtime!

PROMISE has been extended! Since October 2022, there has been a special treatment available for patients with Alpha-1 antitrypsin deficiency…

Thomas HeimannJanuary 5, 2025

Support for relatives of people with alpha-1 antitrypsin deficiency

Farewell to Jürgen Frischmann

Alpha-1 History Video: When Medical History Comes Alive