Author
Katrin Fell, as appeared in Alpha1 Journal 1/2025.
The Rare Diseases Run 2025 This year's event took place under unusual circumstances. Due to bad weather and its overlap with Carnival season, participation was unfortunately lower than hoped. A total of €41,600 in donations was collected at the event. However, only €400 of this went directly to Alpha1 Germany e.V., demonstrating that there is still considerable potential for future events.
It is particularly regrettable that so few registrations were received specifically for Alpha1 Germany. Therefore, we would like to encourage everyone to actively participate next year. Speak to your local group leaders or organize a run (or walk) with your pulmonary exercise group – together we can achieve so much more! Your employer, your children's school class or sports group, and other groups can also register and receive a discount.
The date for the next Rare Diseases Run has already been set: 5th RARE DISEASES RUN 2026 from February 23rd to March 1st, 2026.
Participation is very easy: all you need is a smartwatch or a training app on your phone to record your running data. This data can then be conveniently uploaded to the Rare Diseases Run portal – that's it! It's a simple way to contribute to raising awareness for rare diseases.
For next year, we hope for a significantly larger number of participants to generate even more donations. The long lead time allows us to plan events well in advance. Together, we can achieve a great deal and raise awareness of the Alphas' needs.
We look forward to your support and to a successful and fun event next year!
If you require further information or have any questions, please do not hesitate to contact me.
34,311 participants and €326,350 in donations.
