Meldungen der Gesellschaft für Alpha-1-Antitrypsinmangel Erkrankte

Alpha1 Journal

Alpha1 Journal: Issue 1/2025

Alpha1 Journal Issue 1/2025 Fresh knowledge towards better therapies – Highlights from research, practice…

Editorial team Alpha1 Germany eV.August 18, 2025

Der Hamburger Hafen bei Sonnenuntergang. Hier fand das SHG-Treffen in Scheenefeld statt.

Generally Pulmonary exercise SHG Hamburg

Self-help group leader at: „My Breath My Way“ in Lüneburg, June 18, 2025

On June 18, 2025, Marion and Uwe Deter, the leaders of the Hamburg Self-Help Group, participated in the event…

A1D Web Editorial TeamAugust 13, 2025

Generally Comorbidities skin

Extremely rare: c-ANCA vasculitis

Extremely rare: c-ANCA vasculitis (granulomatosis with polyangiitis) (formerly Wegener's granulomatosis or Wegener's disease). This inflammation is smaller and…

A1D Web Editorial TeamAugust 11, 2025

Generally SHG Rhein-Neckar-Odenwald

Change in group leadership of the SHG Rhein-Neckar-Odenwald as of August 1, 2025

Hello and good day, dear members of the SHG RNO, I hope you are all well…

A1D Web Editorial TeamJuly 29, 2025

Generally Event reports

3rd Alpha1 Patient Day in Kempten in the Allgäu region

Alpha1 Patient Day in Kempten, Allgäu On July 19, 2025, CSL Behring hosted its 3rd Alpha1 Antitrypsin Deficiency Patient Day in Kempten…

A1D Web Editorial TeamJuly 29, 2025

Generally Children

Genetically tested for a good start in life? Genomic screening of newborns under scrutiny.

Genetically tested for a good start in life? Genomic screening of newborns under scrutiny. A good video…

A1D Web Editorial TeamJuly 14, 2025

Alpha1 Journal: Issue 1/2026

Air for life

Announcement for the 2nd meeting of the SHG Rhein-Neckar-Odenwald