Author
Alpha1 Germany e. V.
With „Alpha1 – well heard“ Alpha1 Germany is launching its own podcast for people with Alpha-1 antitrypsin deficiency, their families, and anyone interested in the topic. Whether on the way to work, during a walk, or relaxing at home – the podcast offers a convenient and easy way to listen to fascinating topics related to Alpha1. The aim is to impart knowledge, share experiences, and give a voice to the Alpha1 community.
The story of Alpha1: Our first podcast episode
To begin, we'll take a look back at the history of alpha-1 antitrypsin deficiency. How was the disease discovered? What scientific milestones have shaped our understanding of alpha-1? And how has the situation for those affected changed over the decades?
Our first chairwoman will discuss this. Marion Wilkens and Prof. Dr. Sabina Janciauskiene out of our Scientific Advisory Board. Together they contextualize important developments and show why education, research and networking still play a crucial role for people with Alpha1 today.
A podcast for the Alpha1 community
The first episode is just the beginning. In the future, we want to expand the podcast step by step and create a platform that imparts knowledge, shares experiences, and connects people. We plan to include conversations with patients, family members, doctors, and other experts from medicine and research.
The aim is to create a diverse range of offerings that informs, supports, and encourages.
Listen now!
The first episode of the Alpha1 Germany podcast is now available on Spotify. We look forward to many more exciting conversations and hope you enjoy listening!
Listen now!
The first episode of the Alpha1 Germany podcast is now available on Spotify. We look forward to many more exciting conversations and hope you enjoy listening!
