Participation in a study investigating mental health Burdens and quality of life in people with COPD due to alpha-1 antitrypsin deficiency (AATD)
Dear interested parties,
We cordially invite you to participate in a scientific online study conducted by Philipps University of Marburg under the direction of Prof. Dr. Koczulla. The aim of this study is to gain a better understanding of the psychological burdens, such as anxiety and depression, and their impact on the quality of life of people with COPD due to alpha-1 antitrypsin deficiency (AATD).
Participation is exclusively via an anonymous online questionnaire and takes approximately 30 minutes.
Your participation will help us gain important insights into the specific challenges of AATD. These insights could contribute to improving support and treatment services in the future.
Who can participate?
All adults with a medical diagnosis of COPD due to alpha-1 antitrypsin deficiency.
Here's how it works:
Click on the following link to access the study and participate in the survey. First, you will be taken to an information letter and a
The consent form is followed by the questionnaire.
Note regarding future contact:
At the end of the survey, you can voluntarily provide your email address if you are interested in a follow-up study on digital psychotherapeutic support for
Patients with AATD are being examined. Providing your email address is solely for the purpose of potential contact and is optional.
Thank you very much for your support and your interest in our research project!
If you have any questions, please contact Dr. Tessa Schneeberger (TSchneeberger@schoen-klinik.de) or Dr. Inga Jarosch (IJarosch@schoen-klinik.de).
