Alpha-1 and the psyche
Dear readers, we are very happy to address your wishes to not focus solely on topics such as studies, progress, and the fight against the effects of alpha-1 antitrypsin deficiency. We thank you for suggesting that we give more space to the areas of coping with everyday life and anxieties, including fear of death.
With Dr. Monika Tempel, we have an experienced physician at our side who has dedicated herself to psychopneumology for many years and regularly contributes a psychology column to our journals and website. We thank her most sincerely for this and warmly recommend her website "Psychopneumology".
Ms. Monika Tempel is our advisor for the areas of coping with illness and family members. On her new website, she has, among other things, created a blog on the topic of "Lung Diseases and Mental Health": www.psychopneumologie.de/blog . There, she posts regularly and in detail about current topics. Among other things, three of her blog posts deal extensively with Alpha1 antitrypsin deficiency.
Blog: Alpha-1 Antitrypsin Deficiency and the Psyche: Stresses – Needs – Treatment Perspectives
The first part covers the following topics:
Desirable support services for the psychological burdens of AATM – illustrated by the experiences of those affected during the communication of their diagnosis.
The second part is about:
Desirable solutions for the psychological burdens of AATM – illustrated by the experiences of those affected with motivation, adherence, acceptance and self-management.
The third part deals with this:
Desirable solutions for the psychological burdens of AATM – illustrated by the experiences of those affected with coping, progression anxiety and end-of-life anxieties.
In addition to the blog, you will find tried-and-tested materials for download in the "Service" section. The "Psychopneumology Lexicon" also explains important terms closely related to the topic of "lungs and mind".
Monika Tempel offers support (by phone or email) for individuals experiencing mental health challenges, particularly those with Alpha-1 personality disorder, and their families. This service is free for members of Alpha-1 Germany and their designated support persons.
