Author
Alpha1 Germany eV.
As announced in the last newsletter, we would like to take you into the exciting world of research – towards possible future therapies and the hope that arises from them.
Alpha-1 antitrypsin deficiency is the focus of numerous studies, and we will be reporting on some of them in the coming weeks. (See page...) clinicaltrials.gov There are currently 132 studies on this topic. Filtering the results to show studies that are recruiting or about to recruit, and those that are already underway (recruitment complete), still leaves 31 relevant research projects. We will not be able to report on all of them.
We'll start with the Takeda study, followed by Wave, Intellia, and many more, including an article on the potential use of biologics. Our newsletters explore innovative therapeutic approaches such as DNA editing, gene addition, RNA editing, and more. Unfamiliar with these terms? That's precisely why we'll be delving deeper into these topics in upcoming issues. Stay tuned!
Artificial intelligence in medicine: opportunity or risk? Register for the webinar now!
In cooperation with Grifols, we would like to prepare you for a possible future – or simply discuss the use of artificial intelligence (AI) in medicine. Is AI a great opportunity, especially for rare diseases? Or does it rather pose the risk of becoming a frightening "doctor-replacing monster" that leads us astray?
In the AI webinar on Thursday, November 21, 2024, at 7:00 PM (Duration: 90 minutes) Under the motto "Find the Zebra – Find the Alpha," we invite you to learn more about the significance of AI for patients. Fabian Lechner from Philipps University of Marburg will speak about "AI and Rare Diseases – How We Can Find Solutions Faster." But what happens when "Dr. Google" fails? Can AI support the human doctor? Dr. Rainer Glöckl from Schön Klinik Berchtesgadener Land will explore this fascinating question.
Look forward to an evening full of insights that will put even a thriller to shame!
Excellent: Together for a better quality of life!
We'll stay on the topic of the future, because what we're training today is the building block for a longer life with much more quality of life!
We are all the more delighted that our "Fit in Body and Mind" project has received an award! With third place in the funding competition of the pharmaceutical companies' fund and a grant of €3,000, we can continue to offer and secure our online lung exercise and memory training sessions. The award ceremony on November 4th was a particularly moving moment.
You can read more about this in the press release:
If you would like to participate in our online program, you can find all the information here:
November is Alpha-1 Awareness Month
A little tip: Use November to invite neighbors and friends over for a cozy tea. Share your story – tell them how you're coping with your illness and what strategies help you get through the winter. You'll be surprised: Often, someone knows someone who knows someone else…
This is also Alpha 1 Awareness Month!
You can read more about this in the press release:
If you would like to participate in our online program, you can find all the information here:
European Online Patient Day: Now available as a recording!
In our last newsletter, we promoted the European Online Patient Day, a collaboration between ELF, EARCO, and the Alpha-1 Europe Alliance. If you missed it, it is now available to watch: Click here to access the recording.
„"Just take a deep breath – your 10-minute break"“
Finally, we would like to give you a special recommendation: Treat yourself to ten minutes of conscious breathing – a suggestion from the „Twenty-Nine-Five“ team from Essen, specialists in breathing therapy and training.
You can find the download for the exercise at the bottom of this page. Try it out and enjoy the moment!
