Alpha1 Children's and Youth Day 2016 in Düsseldorf
Author
Alpha1 Germany eV.
As the largest German patient organization that deals exclusively with the topic Alpha-1 antitrypsin deficiency To address the challenges faced by children and young people, Alpha1 Deutschland eV invites affected families to an information weekend every two years. The Alpha1 Children's and Youth Day 2016 took place from November 18th to 20th in Düsseldorf.
We had a program with exciting presentations:
Dr. Rüdiger Kardorff, gastroenterologist at Marienhospital Wesel
Alpha-1 antitrypsin deficiency in children and adolescents – an overview from a pediatric perspective
Hardly anyone conveys the basic knowledge about AAT deficiency to newcomers and old hands in such a clear and understandable way.
Professor Bruno Christ, Head of Cell Transplantation & Molecular Hepatology at Leipzig University Hospital
Alpha1 and the liver – deeper insights and possible outlooks
His particular interest lies in the field of liver research; he will present possible therapeutic approaches for AAT deficiency.
Ms. Andrea Meiners, certified psychologist at Marienhospital Wesel
No one is sick alone – What makes our Alpha-1 family strong
The focus will be on the many questions that arise when dealing with a genetic defect within a family, on anxieties and doubts, but above all on possible solutions and helpful tips.
After the presentations, there was plenty of time for questions and discussions with the speakers.
