Author
Alpha1 Germany eV.
The voices of those affected are invaluable, especially when it comes to rare diseases. Marion Wilkens, our Alpha1 Chairwoman, recently took the opportunity to share her personal story and experiences with her Alpha-1 antitrypsin deficiency in an article for the WELT campaign "Allergies & Respiratory System." In her article, she not only speaks openly about the challenges she faced with her diagnosis but also gives hope to other affected individuals. She emphasizes that the exchange among Alphas provides crucial support for many, and she describes maintaining and fostering this support network as one of her main tasks.
”""Being affected by a rare disease that is not visible makes it difficult to explain to others... Today I have learned a lot about it and know that it helps to share and talk about it.""
As Alpha1, we can say that Marion Wilkens' contribution is an inspiring reminder of how important the voices and experiences of people with rare diseases are in public discourse. Articles like this provide a platform to raise awareness of Alpha-1 antitrypsin deficiency and to highlight the needs of those affected. We are delighted with this special opportunity and, of course, want to share this wonderful article. Please visit the Online version of "Allergies & Respiratory System"„ or download it E-paper of the current issue down.
You can read the full article by Marion Wilkens here:
